Dear Caregivers,
This piece isn’t dainty. Because healthcare is never dainty.
Earlier this year, my mother was hospitalized for the sudden rupture of an aneurysm in her brain. You can read about an aspect of that experience here. Last week, she came home.
Just two days after she was home, I found her out of the bed and sitting on the ground. She had wet herself. And the feeding tube that was supposed to stay in her stomach while she relearned how to swallow safely? It was next to her pillow.
My father had stepped away to the bathroom for two minutes before this happened. Fortunately, she was okay - and as a gastroenterologist, I knew what to do about the feeding tube (get a replacement into her belly fast before the hole closes)!
It’s not easy to take care of the everyday needs of someone who can’t do them herself. This is what we’ve been finding out firsthand.
So I write this to express gratitude. For all the caregivers in the hospital who looked after Mom. In our more ignorant moments, we doctors may sometimes call you “ancillary personnel.” I will never use that phrase again. You are NOT ancillary.
It was a sacred act for you to welcome Mom to each new morning. And to suction all the gunk that had built up in her mouth overnight.
It was a sacred act for you to help her out of bed when she needed to go the bathroom. And to clean her up when she had soiled herself.
It was a sacred act for you to feed her every day through that tube the smoothies I was providing you, made from greens planted with her own hands before she became ill. And to keep her from pulling out the tube.
It was a sacred act for you to help her move her arms and legs and body every day to rebuild her strength. And to roll her in bed to prevent pressure sores.
It was a sacred act to sing to her so she could be healed through the power of music. And to make her screech sounds so she could swallow again.
When you started calling her Auntie like we do in Indian culture, when you braided what was left of her hair, when you called her Amma because she reminded you of your own mother, when you lifted her out of bed so she could bear her weight on yours, when you respected our wishes for privacy, when you refused to kick me out of the room because I refused to wear an infection control gown with no actual infection to control, when you gave us blankets so we could stay warm in that cold ICU room, when you let my brother sneak his two young boys into the ICU because he wasn’t sure if they would ever see their Nanamma alive again… Those were sacred acts.
And when you tucked her in at night and wished her well - like she was fully present and listening, even in her coma…that was sacred.
A number of doctors have done a number of blood tests, X-rays, and procedures as part of my mom’s medical care. You have been as much a part of her medical care as they have.
As we face the challenge of doing for Mom at home what you did for her in the hospital, I wish for you one thing. I wish that at some point while you’re entering the reams upon reams of useless data into your patient’s electronic medical record - data that serves primarily our medicolegal- and medicobilling-industrial complexes, not the patient - you could get a pop-up box on your screen. A pop-up that doesn’t just add to all the medical noise ill-serving for good patient care. No, a pop-up that just says thank you, from a guy like me to someone like you. For the sacred acts you perform day in and day out. Ordinary acts that are extraordinary.
In deep gratitude,
Dr. Venu Julapalli
Syndicated with permission from Tincture. Dr. Venu Julapalli is the Founder of the Integral Gastroenterology Center and Co-Founder of Health 3.0 and Conscious Medicine.
Dear Venu, This letter of gratitude that you wrote for the people who took care of your mom, reminds of the one that I didn't write... to all the people who took care of me when I had my son. In my heart I thanked them but I wish I had let them know how grateful I was for everything they did for me and my baby. I remember a nurse crying with me when my doctor told me that I should stop pushing & have a C-section, it was the right thing to do but I was so shattered. They must have thought I took it all for granted but I didn't. I wish I had told them so....
Lovely that you finally recognize the holy contributions of the most of the healthcare team. What kept you from engaging the chaplain, whose team role it is to journey with you as you search for the purpose and meaning you sought/seek?
1 reply: Lauren | Post Your Reply
Thank you for recognizing the Sacredness in what caregivers share and do. <3 Beautifully stated. May ALL recognize there are no "ancillary personnel" Every person who provides care matters so very much and contributes deeply to well being. <3
1 reply: Transcending | Post Your Reply
Sacred indeed -- humanity is always sacred though we may be repulsed by outward appearances. In our own family of health practitioners and aging elders, we know this Truth in mind, heart and soul. }:- ❤️
On Apr 24, 2018 Anita Stewart wrote:
As an RN for 40 years in acute care settings, it is a breath of fresh air to read these words from an MD who has experienced what nursing is all about in such a personal way. I am a holistic nurse with a private practice now in Bend, OR. (www.bridgesoftheheart.com) My passion is to bridge Energy Medicine with Mainstream Medicine. I spoke to the first year nursing students at our local college the other day and would have loved to share this powerful testimony with them. I may just send to the instructor and have her read it. Thank you Dr. Julapalli for pouring your heart and soul out to the world. Nursing is misunderstood by so many, especially the MD's who work so closely with them. This reminds me of the movie "The Doctor" with William Hurt, where a self-centered MD develops a life-threatening disease and gets to see life from the patients view...a must see for all who work in medicine.
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